Spina Bifida Hydrocephalus Scotland (SBH Scotland) adds quality to life, every day. We are the only registered charity with a Scotland-wide remit to support children, young people and adults with spina bifida and/or hydrocephalus. Since 1965 we have been supporting people in Scotland with spina bifida and we now support more people than ever before. Our services are not provided by the NHS or any other organisation. We are looking into the possibility of opening a charity shop to continue our fundraising efforts, however, due to limited resources to date we have not had the means to research the pros & cons of this.
Spina Bifida Hydrocephalus Scotland (SBH Scotland) support over 3,500 children, young people and adults with spina bifida and/or hydrocephalus, their carers and families across Scotland. Spina bifida occurs early in pregnancy and can affect any mother no matter their age, ethnicity or background. The majority born with the disability will be paralysed from the waist down usually requiring lifetime use of a wheelchair and will be affected by bowel and bladder dysfunction. Additionally, about 80% of people with spina bifida will have hydrocephalus which may lead to learning and sensory difficulties.
SBH Scotland (formerly the Scottish Spina Bifida Association) has a 50 year record of self-sustainability and currently only receives 1% of statutory funding. Annual operational costs of circa £900,000 are raised via an in-house fundraising team of five. Our annual expenditure includes the cost of providing Scotland-wide Family Support Services to over 3,500 service users.
To ensure long term financial sustainability and help with core running costs the fundraising team would like the help of a BeyondMe team to carry out a feasibility study into the possibility of developing a sustainable income via a charity retail shop. We have some detail on successful models based on previous research, however overall we are limited in knowledge and do not have the resources to carry out a feasibility study internally. The study would research key areas such as location, footfall, branding and position in market place, resource requirements (salary staff and volunteers) expenditure and income predictions.